by Nick | Feb 21, 2016 | Uncategorized
The first 24 Hours! What an amazing first 24 hours. The outpouring of support and donations has been amazing, thank you everyone who has been involved so far. It still seems like an incredibly massive task trying to get together the amount of funds needed to get where...
by Nick | Feb 20, 2016 | Uncategorized
They say you have to start somewhere, so here it is. I have started a givealittle page to get the fundraising effort started. We will be doing a number of fundraisers over the next…however long it takes.. to try to reach our goal, along with finding as many ways...
by Nick | Feb 18, 2016 | Uncategorized
HSCT Approved! Whoa, had this email last night “Dear Nick Thank you for your reply. I think you would be a good candidate for a transplant, and as you have rightly pointed out, patients who have it done early are most likely to improve. Please work with Yati to...
by Nick | Feb 17, 2016 | Uncategorized
It has been nearly 2 months since my last post around Christmas time. Things since then have been a mixed bag. I have had a lot of time with my family and that has been amazing, we’ve gotten out and done a lot of things and made the best of the weather. The...
by Nick | Jan 16, 2016 | Uncategorized
I haven’t really posted anything of substance for a while so thought a little pre-Christmas post was in order. The reason I haven;t had a lot of posts is that there hasn’t been an awful lot to post, I didn’t post at the end of the drug trial as I was...