21st Feb – The first 24 hours

The first 24 Hours! What an amazing first 24 hours. The outpouring of support and donations has been amazing, thank you everyone who has been involved so far. It still seems like an incredibly massive task trying to get together the amount of funds needed to get where...

20th Feb – The Fundraising Starts

They say you have to start somewhere, so here it is. I have started a givealittle page to get the fundraising effort started. We will be doing a number of fundraisers over the next…however long it takes.. to try to reach our goal, along with finding as many ways...
19th Feb 2016 – HSCT Approved!

19th Feb 2016 – HSCT Approved!

HSCT Approved! Whoa, had this email last night “Dear Nick Thank you for your reply. I think you would be a good candidate for a transplant, and as you have rightly pointed out, patients who have it done early are most likely to improve. Please work with Yati to...
17th Feb – Things are changing

17th Feb – Things are changing

It has been nearly 2 months since my last post around Christmas time. Things since then have been a mixed bag. I have had a lot of time with my family and that has been amazing, we’ve gotten out and done a lot of things and made the best of the weather. The...

24th December – General Update

I haven’t really posted anything of substance for a while so thought a little pre-Christmas post was in order. The reason I haven;t had a lot of posts is that there hasn’t been an awful lot to post, I didn’t post at the end of the drug trial as I was...